So my son Leif Cole has safely entered the world. He was a good size upon birth 8.4 lbs. I couldn't be prouder. Less than 24 hours after he was born he started to spit up bile and was rushed to the Children's Hospital in the city. There numerous tests were done on him, and numerous needles were stuck in him. The next day he was diagnosed with Hershsprung's Disease, a disease of the bowel in which the ganglion nerves are missing thereby keeping the bowl in a constant state of contraction. Leif was quite sick and wasn't able to pass any faecal matter so he had to have a colostomy (a surgery in which the intestine is redirected to empty out of the abdomen, bypassing the effected bowel.) He has now been home for a week after 2 weeks in the neonatal ICU. He will need one more major surgery to bypass the bad bowel and make him able to poo out his rear.
Due to the amazing advances in medicine, his diagnosis is relatively benign. He is alive and healthy and will most likely live a normal life.
God gave him this disease. But God also prepared me for this during my entire pregnancy. God gave him the disease, but God also wept with me as Leif was given a new IV almost daily and had a tube inserted down his tiny throat. God wept with me and held me, as He weeps with all mothers over the injustice of life suffered by their children. During my pregnancy God constantly reminded me to pray that my faith would be strong enough to handle something bad happening to my son...and now God has provided me with a tiny faith able to cope with this. I can thank God for my gorgeous son, and that he is home with us now and that I get to be a part of his every moment in life.
I hope this makes sense.
2 comments:
it's good to hear your heart is being shaped by this, that flying daggers can turn into messanger pigeons and we're not doomed to eternally shaking our skinny wrists to the heavens for the length of our days. thanks for your perspective today erk, it's encouraged me.
Chuck, Thanks for your comment. I wish we could all be together and hold each other in the waves of all our crises. You're a good friend and we are praying for you and things.
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